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Research
Results
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Did you know: |
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96% of Nebraskans do not wish to be on
life support machines simply to prolong an inevitable
death, yet only 5% have conveyed those wishes to their
doctors. |
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75% of Nebraskans
want to talk about their end of life wishes, but want
their spouse or family to be the ones to initiate the
conversation. |
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81% of Nebraskans fear they will have
a painful death, yet 1/3 erroneously worry that they
would become addicted to pain medications and nearly
half worry that their doctors will not believe they
are in pain. |
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These are but a few of the insights revealed by
the Nebraska
End of Life Survey
which was published in 2004. Research of this nature serves to tell us
not only about current attitudes and wishes in our state, but also highlights areas
of misconception and needed change.
Below you will find links to national and
statewide studies that are available online. If you would like more information
about end of life, hospice or palliative care issues, please
contact the Grand Island Coalition for End of Life Care at
308-398-5485, or by e-mail at info@respectmywishes.org. (Return
to top)
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Statewide Research
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Nebraska End
of Life Survey. A
random sampling of rural, urban and suburban Nebraskans
reflecting issues and concerns around advance
directives, pain medication, spiritual needs, community
support and awareness of resources. This study was
conducted by the Nebraska Compassionate Care Coalition.
(Return to top)
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National Studies
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Means
to a Better End (large .pdf document)
- A national “report
card” published by Last Acts, a Robert Wood Johnson
initiative designed to improve care of the dying. This
report rates each state on 8 key indicators of quality
end of life care. Along
with most states in the nation, Nebraska received C’s
and D’s.
Living
and Healing during Life Threatening Illness (average
size .pdf document) - In a study sponsored by Supportive
Care of the Dying, focus groups were conducted
in 11 sites throughout the country, including urban
and rural locales. Four subpopulations were sampled
in each venue: persons with life-threatening illness;
family caregivers; professional caregivers; bereaved
family members. This qualitative study looked at
each group's concerns and fears, barriers and aides
in overcoming problems, and how their experience
has shaped their attitudes and values.
(Return to top)
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Please Note: Grand Island Coalition for
End of Life Care does not specifically endorse these
resources, but offers them as a sample of the kinds of
materials and services that are available.
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This website was created by the Grand
Island Coalition for End of Life Care, a community organization dedicated
to improving end of life care through education, advocacy and support. We
gratefully acknowledge the generosity of KDSI for
their donation of webhosting services. Site design and layout created by Let's
Collaborate! |
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