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Resources
for
media professionals
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Whether it’s the controversy of a Terry Schiavo
case, or the poignant passing of Dr. Green on ER, the topic of death is
losing its formerly taboo status. As Baby Boomers find themselves caring for
ailing parents, they are asking questions and wanting answers about this important
life passage.
Media professionals are uniquely positioned to provide those
answers. From news pieces to edutainment, the Fourth Estate
has the opportunity to present the latest thinking in the
new field of palliative care.
Below is a list of resources that can help you with your projects: sources for
quotes, personals stories, national organizations, media support, and past news
stories on our coalition.
In addition, we suggest you also check out our section on Research
Results. These are well-documented studies that can
provide you with excellent background information.
Resources |
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For quotes and attributions
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Grand Island Coalition for End of
Life Care. This group of professionals includes
doctors, social workers, ministers, attorneys and
others who work with the dying. Ideal for local stories,
information about existing services, and a community
perspective on current trends and issues. Contact:
Jennifer Eurek at 308-398-5485
or e-mail at info@respectmywishes.org.
Nebraska Coalition
for Compassionate Care.
This is the statewide coalition of end of life professionals.
They can refer you to statewide authorities and give
you information about the status of end of life care
in Nebraska as a whole, including results
of their 2004 end of life survey.
Center
for Practical Bioethics.
With a special emphasis on advance directives, pain
management, and end of life issues, this popular center
(formerly known as the Midwest Bioethics Center) has
for 20 years been at the forefront of integrating health
care practice and ethical decision-making.
Last
Acts Partnership.
This non-profit organization includes authorities on
the national level with expertise in policy issues and
national trends. The Partnership is a coordinating venuefor
three organizations: Last
Acts
(for professionals), Partnership
for Caring
(for consumers), and Rallying Points
(for community coalitions) all dedicated to improving
end of life care. |
For personal stories
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Last
Acts Writer’s Project. Sponsored
by Last Acts,
by Last Acts, this group collects copyright-free human interest stories to help
prime the pump of reporters, playwrights and screenwriters. They also offer consulting
services to be sure your facts and premises are accurate/true to life—and
death—portrayals .
Grand Island Coalition for End of Life Care. We
can put you in touch with local residents who are willing
to talk about their situation. Contact:
Jennifer Eurek at 308-398-5485
or e-mail at info@respectmywishes.org. |
National Organizations |
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Association of
Death Education and Counselors–Interdisciplinary,
national support organization for bereavement counselors,
clergy, funeral directors and medical personnel.
National Hospice and Palliative Care Organization – Professional
organization lobbying for end of life issues.
National Family
Caregivers’ Alliance – An
advocacy and support organization for caregivers. Conducts
research on caregiving issues and frequently testifies
to Congress.
Rallying
Points–National support organization
for the more than 350 end of life community coalitions
such as Grand Island Coalition for End of Life Care.
Partnership for Caring – With
an emphasis on advance care planning, this national
non-profit organization seeks to raise consumer expectations
about end of life care.
Compassionate
Friends–National self-help organization
offering friendship and understanding to families
that have had a child die.
National Association for Home Care – Professional
association for nurses, nurses aides, hospice personnel
and other in home care providers.
National Academy of Elder Law Attorneys – Professional
organization of attorneys specializing in the legal
needs of senior citizens. Website includes a zip code
searchable directory of members .
National Association of Professional Geriatric
Care Managers – Professional
organization of social workers trained specifically
to assess the needs of the elderly and make referrals
to appropriate support services.
National Guardianship Association – Professional
organization of lawyers, financial planners and other
personnel who serve as court appointed guardians when
an individual is no longer able to make financial and/or
health decisions for him/herself. |
Media Support |
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Finding
Our Way. The very popular Knight Ridder
syndicated series of newspaper articles is now
available online. Numerous stories weave through
15 poignant yet informative articles, covering
topics such as Living with Dying in America, Conversations,
Widowhood, Palliative Care, Advance Directives,
Culture & Diversity, Spirituality & Faith,
Last Rites, Caregiving, Hospice, Nursing Homes & Long
Term Care, When a Child is Dying, Violence & Unexpected
Death, Grief & Loss, and Visions for the Future.
Media
Center Library of the Hospice Foundation
of America offers backgrounder information for
the press covering topics such as hospice usage;
children, adolescents and loss; grief and the
holidays; humanizing medical system; assisted
suicide and changing care for the dying.
On
Our Own Terms. Pioneering Bill Moyers
(PBS) website which brought together television
documentary programming, the Internet and media
advocacy to launch community end of life coalitions.
And
Thou Shalt Honor. Based on a caregiving
documentary similar to “On Our Own Terms,” the
focus of this website is to offer support for
family caregivers. Includes outreach and media
support materials.
Brain Duke of WHYY. This Philadelphia PBS media
consultant has been very active in generating media
productions highlighting end of life and caregiving
issues. Email him at bduke@whyy.org |
News Stories |
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Formation of the Grand Island Coalition for
End of Life Care, October 2002
National Report Card on End of Life Care. Learn
how Nebraska fares relative to other states. November
2002
End
of Life Information Session to go over
wills and other important decisions when facing the
end of life. May 2003
$140,000
Grant received to
increase community and professional understanding
of end of life issues. August 2003
Free Respect My Wishes Packets being distributed
by Grand Island Coalition for End of Life Care. November
2003. |
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Please Note: Grand Island Coalition for
End of Life Care does not specifically endorse these
resources, but offers them as a sample of the kinds of
materials and services that are available.
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This website was created by the Grand
Island Coalition for End of Life Care, a community organization dedicated
to improving end of life care through education, advocacy and support. We
gratefully acknowledge the generosity of KDSI for
their donation of webhosting services. Site design and layout created by Let's
Collaborate! |
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